Trisomy 13, also called Patau syndrome, is a chromosomal condition that is associated with severe mental retardation and certain physical abnormalities. These abnormalities include small eyes that may exhibit a split in the iris (coloboma), an opening in the roof of the mouth (a cleft palate) and/or a cleft lip, weak muscle tone (hypotonia), skeletal abnormalities, an increased risk of heart defects, and other medical problems. Affected individuals rarely live past infancy because of the life-threatening medical problems associated with this condition.
Of course the doctor suggested to the parents that they should consider terminating the pregnancy.
Instead, drawing their strength from God, the named the baby "Grace". The reason for the name is powerful in that they truly believed that she was in God’s hand. There was nothing the mother could do to change anything. There were no magical prenatal vitamins that could change things. The father had no control and the doctors were powerless. This is a testimony of true grace. They came to the realization that God was in control and they realized their helpless state.